Here's what they do know:
It appears to be a desmoid tumor, a fibrous aggressive fibromitosis. It may be attached to my bowel or colon. It is very deep in my pelvis, behind & under a lot of important organs, & is basically pushing everything over as it grows, my colon, rectum & vagina included. So a rectal exam was in order...don't I look thrilled? (I was pointing at a suspicious stain...)
It was taken using the "bleak" setting on my phone...appropriate, no?
That exam revealed that it doesn't appear to originate there but he could feel it with the tip of his finger so it's, ahem, about a finger deep (apologies in advance to any of my former high school students and anyone else who never expected to be reading about my rectum).
He also checked my lymph nodes & belly but felt nothing.
He said it was not likely to be in the colon.
I was sent to give blood to check for clotting ability in advance of surgery which will probably be next week. It will be performed by an Interventional Radiologist after he has had a chance to study my scans to figure out how to even get to it for a biopsy. They want to avoid taking out the whole thing right now since that would involve major abdominal surgery so they will basically take a core out for testing.
Then my file will be reviewed by the entire oncology department in a team meeting to discuss the best treatment plan.
Possible treatments can be surgery to remove the mass and all affected tissue/organs, hormonal therapy, chemotherapy, and/or radiation to shrink it.
The comforting words I'm holding on to from the meeting today were: "we don't anticipate a huge problem" in response to my declaration that this had to be fixable because I had 2 toddlers at home who need their mama.
They will call me either Friday or Monday to schedule the biopsy.
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