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Tuesday, May 8, 2012

Doctor checkup

We had our every-two-month checkup with Dr. Ettner today. The girls looked forward to seeing him all morning and were quite happy when he came into the room for the exam. For the first time, they both sat in his lap and listened through the stethoscope. No tears, lots of laughs, perfect doctor visit.

Here are their updated stats (with March stats in parenthesis):

Kate
Height: 33" standing height (34 1/2" recumbent length)
Weight: 28 lbs. in diaper (26 1/2 lb in diaper)
Head: 46 1/2cm (45cm)

Lucy
Height: 35" standing height (36" recumbent length)
Weight: 29 lbs in diaper (27 lb naked)
Head: 47 1/2cm (47 1/2cm)
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I took Marisa with me today so she could keep the girls in the play area while I reviewed my oncology visits with Dr. Ettner (he's our family practitioner as well as our pediatrician). He, of course, recommended getting a few more opinions and gave me the names of two gyno oncologists, one at Loyola University Medical Center and one at Northshore Univ. of Chicago. He also recommended Sloane-Kettering as one of the best places in the country for specialists in soft tissue tumors so I will be sending my scans/slides/pathology reports there as well.

For now, he is going to write a summary of my case thus far and will send it on after I have the next MRI.

On another note, I have received so much encouragement and recommendations on doctors to seek opinions from. One that came in from a reader to my email yesterday was very interesting. Here's some of the pertinent information:

"The leading pediatric colorectal surgeon in the world is in Cincinnati, Ohio, at the Cincinnati Children's Hospital Colorectal Center, Dr. Pena. He works with a Dr. Levitt, and both of these doctors are pioneers in their field.  They created a new specialty that is growing rapidly worldwide.  I have seen videos of Dr. Pena's surgery and think that his techniques would work extremely well on you, saving your colon and probably your uterus and bladder, too.  They specialize in preserving the colon.
 

Even though they are pediatric surgeons, they would know who to refer you to for their kind of surgery in adult medicine.  Their techniques may not be well-known in adult medicine so your current doctors may not be aware of these techniques.
 

This may sound pretty different, but when they operate, they use a postsaggitudinal incision, meaning the patient is in the fetal position face down and the incision is made right in the crack of the bottom.  This area doesn't have a lot of nerves so there is less pain during recovery, there are less blood vessels so bleeding is minimal, and few nerves, so nerve damage is rare.  This gives the surgeon a super clear view of the deep pelvis and room to work, especially when combined with endoscopic surgery tools."

Every day I am amazed by the generosity of my readers, complete strangers, who take the time out of their day to share what they know in the hopes that it can make our lives better.

Thank you.

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