I received notice yesterday that I got into MD Anderson's sarcoma hospital in Houston. My appointment is Wednesday, June 20. Len and my mom will hold down the fort here with the girls while I go to Houston for a few days. They ask that I stay 5-7 working days after my appointment in case they need further testing but I'll need to head back by Saturday as my mom will be leaving shortly after that. I'm planning to take a digital recorder with me so that Len and my mom will be able to hear the consultation when I get home.
But the better news is that I am meeting with Dr. Raphael Pollock. I just called up and asked to see the person responsible for writing the article that my friend Paivi had sent to me. That's when my Patient Access Specialist told me that he no longer sees new patients, especially if they haven't been specifically referred to him via their oncologist. So I sent all my information anyway, including my slides and MRI scans, and now I'm in!
I'm not sure whether I should be elated that I got in with someone who has studied desmoid tumors for a living and is interested in "the development of novel therapeutics for this disease" or if I should be worried that my case was bad enough for him to take me on as a patient.