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Thursday, May 24, 2012

Should I be flattered...or concerned?

I received notice yesterday that I got into MD Anderson's sarcoma hospital in Houston. My appointment is Wednesday, June 20. Len and my mom will hold down the fort here with the girls while I go to Houston for a few days. They ask that I stay 5-7 working days after my appointment in case they need further testing but I'll need to head back by Saturday as my mom will be leaving shortly after that. I'm planning to take a digital recorder with me so that Len and my mom will be able to hear the consultation when I get home.

But the better news is that I am meeting with Dr. Raphael Pollock. I just called up and asked to see the person responsible for writing the article that my friend Paivi had sent to me. That's when my Patient Access Specialist told me that he no longer sees new patients, especially if they haven't been specifically referred to him via their oncologist. So I sent all my information anyway, including my slides and MRI scans, and now I'm in!

I'm not sure whether I should be elated that I got in with someone who has studied desmoid tumors for a living and is interested in "the development of novel therapeutics for this disease" or if I should be worried that my case was bad enough for him to take me on as a patient.

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5 comments:

ashley said...

Oh, I think that is really good news that you got into that doctor. And I am so sorry about your sitter. I would be furious, that was totally unacceptable. Poor Kate and Lucy (and your poor rug!) Hope you find your Mary Poppins :)

Jodie said...

I say we choose FLATTERED. :) Sounds like you're going to be in very capable hands.

Blessedbabs said...

I would take it as simply a blessing. A "don't look a gift horse in the mouth" kind of thing! I'm excited for you that you are going to be able to see THE BEST in the field. We will continue to pray for you and follow your journey.

Elissa said...

It sounds odd to say you love a cancer hospital, but I LOVE MD Anderson! I was also alarmed that they accepted me right away, but it ended up that my cancer wasn't back (hooray!!) so it's not necessarily a bad sign. They also gave me a really long expected time to be there, but I was released after 2 days. Everyone I interacted with there was amazing, and I left feeling incredibly grateful and humbled. It is really a special place, and I am so glad you'll be under such great care. I wish it wasn't 3 hours away or I'd drive over just to meet you in person!!! :)

mommy of 2 said...

Choose elated.

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